Their Final Performance: ProtestNICE4ME

Image reads: THEIR FINAL PERFORMANCE 1.1.   Who better than those who profess to know minds to twist our actions? Those that have plundered the void to plug with their confidence (tricks). To keep those of us blighted by secrets locked tight in our cells bombarded by their (un)veiled attacks. To call us the aggressors in theirContinue reading “Their Final Performance: ProtestNICE4ME”

ME and the Virus that had never really gone

(This is the third part of my M.E story. If you haven’t yet, I’d recommend you read parts one and two, here and here.) In the early part of 2010 I packed my bags and headed to Peru. I had decided to have one last adventure before hitting my forties and quickly found myself 3000Continue reading “ME and the Virus that had never really gone”

M.E and the virus that went away…for a while… (maybe)

(This is the second part of three of my story of M.E.  If you haven’t yet, I’d recommend you read part one here) 2nd Edit: Oops. I managed to forget a very significant event in my life, or maybe block it out, due to my desire to finish this piece and rest. I’ve added it now.Continue reading “M.E and the virus that went away…for a while… (maybe)”

If only

I was just starting to stir this morning. Not quite asleep, not quite awake, lying in the world in between. I felt nothing. No pain, no tiredness, for a moment I thought I had recovered and allowed space to entertain the feeling. But I took a breath and time moved on and it all cameContinue reading “If only”

M.E & The Virus that never leaves

“No poly. I feel like a bag of shit. Didn’t surface until afternoon. Can hardly eat. Can hardly move my eyes.” This was an entry in my diary, one of those five-year diaries mainly girls of my day would be gifted for Christmases or birthdays. In my case it was my 14th Christmas, an ideaContinue reading “M.E & The Virus that never leaves”

Defective

New poem for ME Awareness Month 2021. I wanted to write something that reflects the frustration of being dismissed, ignored & gaslighted because we cannot be “good productive members” of a consumerist economy. Seems apt to post this on International Workers Day too. For more information on living with M.E or caring for someone withContinue reading “Defective”

The formula for Gratitude

Want to know what gratitude feels like? Take away the every day… Take away getting ready for work Take away opening jars, making tea, standing while it brews Take away hats, scarves, sunglasses, flipflops Take away cosy chats, feisty debates, gossiping girls Take away walking, running, cycling, swimming Take away everything you never knew youContinue reading “The formula for Gratitude”

My full time job

“What do you do?”, you say I know what you want to hear – I am a this, I am a that, I am employed, valid, salaried, PAYED As you are. You want me to make sense to you. You want me to be part of the world as you know it. Yet my fullContinue reading “My full time job”

My Bank Holiday and M.E

Some days I just want to sit under a tree. This is the Bank Holiday day we always dream of but very rarely see. Powder blue sky, lush green trees at the height of their vibrancy, parks full of string bikinis, string vests, local boys impressing local girls with too-loud music, bare stomachs and alcopops.Continue reading “My Bank Holiday and M.E”