P/o/EM

I wrote the poem below twelve days ago now. People with M.E. (Myalgic Encephalomyelitis) will recognise the play on a familiar term we use in my title – PEM, which is short for Post-Exertional Malaise. This is a time when M.E. symptoms intensify – the feeling of having no energy, heavy limbs, exhaustion and depletion,Continue reading “P/o/EM”

Less travelled

I might as well live in Timbuktu As far as I am – from me to you. I might as well live in San Salvador Confined to sofas and stuck indoors. I might as well live in Kaula Lumpur Dreaming of dancing away til four, Or even til two,  but now, I might as wellContinue reading “Less travelled”

Ode to a Bad Day

You can gather from the title today is not a good day. Yesterday wasn’t great either but today, has definitely been what those of us with mild-moderate M.E call a Bad Day. I wanted to write today. I also wanted to do some housework. I wanted to go to the library and maybe stop offContinue reading “Ode to a Bad Day”