ME and the Virus that had never really gone

(This is the third part of my M.E story. If you haven’t yet, I’d recommend you read parts one and two, here and here.) In the early part of 2010 I packed my bags and headed to Peru. I had decided to have one last adventure before hitting my forties and quickly found myself 3000Continue reading “ME and the Virus that had never really gone”

P/o/EM

I wrote the poem below twelve days ago now. People with M.E. (Myalgic Encephalomyelitis) will recognise the play on a familiar term we use in my title – PEM, which is short for Post-Exertional Malaise. This is a time when M.E. symptoms intensify – the feeling of having no energy, heavy limbs, exhaustion and depletion,Continue reading “P/o/EM”

Less travelled

I might as well live in Timbuktu As far as I am – from me to you. I might as well live in San Salvador Confined to sofas and stuck indoors. I might as well live in Kaula Lumpur Dreaming of dancing away til four, Or even til two,  but now, I might as wellContinue reading “Less travelled”

Ode to a Bad Day

You can gather from the title today is not a good day. Yesterday wasn’t great either but today, has definitely been what those of us with mild-moderate M.E call a Bad Day. I wanted to write today. I also wanted to do some housework. I wanted to go to the library and maybe stop offContinue reading “Ode to a Bad Day”