FreeDumb Day

Happy FoolishRhetoricExpeditesExcessDeathsOf theMasses Day 19th July, #FreedumbDay is trending  and England has dropped all restrictions. The pandemic is over here as our Government said so. Or rather that is the subtle message that is carried on its waves. They have also told people to take personal responsibility and use caution but since it took chargingContinue reading “FreeDumb Day”

P/o/EM

I wrote the poem below twelve days ago now. People with M.E. (Myalgic Encephalomyelitis) will recognise the play on a familiar term we use in my title – PEM, which is short for Post-Exertional Malaise. This is a time when M.E. symptoms intensify – the feeling of having no energy, heavy limbs, exhaustion and depletion,Continue reading “P/o/EM”

M.E and the virus that went away…for a while… (maybe)

(This is the second part of three of my story of M.E.  If you haven’t yet, I’d recommend you read part one here) 2nd Edit: Oops. I managed to forget a very significant event in my life, or maybe block it out, due to my desire to finish this piece and rest. I’ve added it now.Continue reading “M.E and the virus that went away…for a while… (maybe)”

If only

I was just starting to stir this morning. Not quite asleep, not quite awake, lying in the world in between. I felt nothing. No pain, no tiredness, for a moment I thought I had recovered and allowed space to entertain the feeling. But I took a breath and time moved on and it all cameContinue reading “If only”

M.E & The Virus that never leaves

“No poly. I feel like a bag of shit. Didn’t surface until afternoon. Can hardly eat. Can hardly move my eyes.” This was an entry in my diary, one of those five-year diaries mainly girls of my day would be gifted for Christmases or birthdays. In my case it was my 14th Christmas, an ideaContinue reading “M.E & The Virus that never leaves”

Ode to a Bad Day #2

I am going through some old poems and revising a few, which is as much as I can muster right now mid-relapse. I wrote this one two years ago when I thought I was having a bad day. Perspective can be a wonderful thing and it can also be brutal as I look back todayContinue reading “Ode to a Bad Day #2”

Defective

New poem for ME Awareness Month 2021. I wanted to write something that reflects the frustration of being dismissed, ignored & gaslighted because we cannot be “good productive members” of a consumerist economy. Seems apt to post this on International Workers Day too. For more information on living with M.E or caring for someone withContinue reading “Defective”

Less travelled

I might as well live in Timbuktu As far as I am – from me to you. I might as well live in San Salvador Confined to sofas and stuck indoors. I might as well live in Kaula Lumpur Dreaming of dancing away til four, Or even til two,  but now, I might as wellContinue reading “Less travelled”

The carer’s career

I wrote this poem after texting my husband to pick up some milk. It occurred to me that there are relationships everywhere that at some point one will send this message to the other. I then reflected on what that request meant to me in my relationship and realised it’s depth. Hidden in this mundaneContinue reading “The carer’s career”

The formula for Gratitude

Want to know what gratitude feels like? Take away the every day… Take away getting ready for work Take away opening jars, making tea, standing while it brews Take away hats, scarves, sunglasses, flipflops Take away cosy chats, feisty debates, gossiping girls Take away walking, running, cycling, swimming Take away everything you never knew youContinue reading “The formula for Gratitude”