If only

I was just starting to stir this morning. Not quite asleep, not quite awake, lying in the world in between. I felt nothing. No pain, no tiredness, for a moment I thought I had recovered and allowed space to entertain the feeling. But I took a breath and time moved on and it all cameContinue reading “If only”

M.E & The Virus that never leaves

“No poly. I feel like a bag of shit. Didn’t surface until afternoon. Can hardly eat. Can hardly move my eyes.” This was an entry in my diary, one of those five-year diaries mainly girls of my day would be gifted for Christmases or birthdays. In my case it was my 14th Christmas, an ideaContinue reading “M.E & The Virus that never leaves”

Ode to a Bad Day #2

I am going through some old poems and revising a few, which is as much as I can muster right now mid-relapse. I wrote this one two years ago when I thought I was having a bad day. Perspective can be a wonderful thing and it can also be brutal as I look back todayContinue reading “Ode to a Bad Day #2”

Defective

New poem for ME Awareness Month 2021. I wanted to write something that reflects the frustration of being dismissed, ignored & gaslighted because we cannot be “good productive members” of a consumerist economy. Seems apt to post this on International Workers Day too. For more information on living with M.E or caring for someone withContinue reading “Defective”