M.E & The Virus that never leaves

“No poly. I feel like a bag of shit. Didn’t surface until afternoon. Can hardly eat. Can hardly move my eyes.” This was an entry in my diary, one of those five-year diaries mainly girls of my day would be gifted for Christmases or birthdays. In my case it was my 14th Christmas, an ideaContinue reading “M.E & The Virus that never leaves”

Ode to a Bad Day #2

I am going through some old poems and revising a few, which is as much as I can muster right now mid-relapse. I wrote this one two years ago when I thought I was having a bad day. Perspective can be a wonderful thing and it can also be brutal as I look back todayContinue reading “Ode to a Bad Day #2”

Defective

New poem for ME Awareness Month 2021. I wanted to write something that reflects the frustration of being dismissed, ignored & gaslighted because we cannot be “good productive members” of a consumerist economy. Seems apt to post this on International Workers Day too. For more information on living with M.E or caring for someone withContinue reading “Defective”

Only love

No poem or funny story for you. Just some thoughts and a plan… It’s been a difficult week Less By Thursday the combination of the confirmation of that individual as leader of the Conservative Party, which supposedly makes him my PM, the way above average or even peak temperature that day and M.E symptoms wereContinue reading “Only love”

Ode to a Bad Day

You can gather from the title today is not a good day. Yesterday wasn’t great either but today, has definitely been what those of us with mild-moderate M.E call a Bad Day. I wanted to write today. I also wanted to do some housework. I wanted to go to the library and maybe stop offContinue reading “Ode to a Bad Day”

The eclipse

Burning brightly, joyously. Solidly. Creating life-force and essential fire, until it falls – Shadow Only glimmers struggle to stay Reminders of what lies behind The shadow sits, weighty and cold Dense and obstinate, refusing to leave It stifles and suppresses its enemy – Light For a while it wins. All that once shone removed Pain.Continue reading “The eclipse”

Composure

Yesterday I had that moment all aspiring writers have.  “Why I am doing this?  Am I even any good?  Am I just indulging myself? Should I even bother sharing my work?” I allowed myself some time to reflect on this, to ask the question without a furious search for the right answer.  Instead I rememberedContinue reading “Composure”

My full time job

“What do you do?”, you say I know what you want to hear – I am a this, I am a that, I am employed, valid, salaried, PAYED As you are. You want me to make sense to you. You want me to be part of the world as you know it. Yet my fullContinue reading “My full time job”

My Bank Holiday and M.E

Some days I just want to sit under a tree. This is the Bank Holiday day we always dream of but very rarely see. Powder blue sky, lush green trees at the height of their vibrancy, parks full of string bikinis, string vests, local boys impressing local girls with too-loud music, bare stomachs and alcopops.Continue reading “My Bank Holiday and M.E”

Reblog: From a fellow M.E warrior. Listen to her roar!

Today I am angry, not just mildly displeased or irked but gut wrenchingly, blood boilingly, fist clenchingly, teeth grindingly, word spittingly, ear steaminlgy angry and try having all of those things going on whilst your trying to be articulate. So do I have 5 minutes of your time? Will you indulge this tantrum and […] viaContinue reading “Reblog: From a fellow M.E warrior. Listen to her roar!”