Ode to a Bad Day

You can gather from the title today is not a good day. Yesterday wasn’t great either but today, has definitely been what those of us with mild-moderate M.E call a Bad Day. I wanted to write today. I also wanted to do some housework. I wanted to go to the library and maybe stop offContinue reading “Ode to a Bad Day”

My full time job

“What do you do?”, you say I know what you want to hear – I am a this, I am a that, I am employed, valid, salaried, PAYED As you are. You want me to make sense to you. You want me to be part of the world as you know it. Yet my fullContinue reading “My full time job”

Golden 

I saw my M.E friend today. Not just saw but witnessed her in her magnificent glory as she said “I do” sparkling in gold from the inside and out. Glowing from growing a child, a long held dream, and shining with love for her new husband.   We had the briefest but a poignant momentContinue reading “Golden “

Kind of tired

Back home now after a jampacked weekend with family. What a lovely time it was too although now I feel a bit jetlagged from the various mostly exertive (but fun!) activities. This used to be a scary moment for me. But this time not so. By now i’d be experiencing anxiety about overdoing it, frettingContinue reading “Kind of tired”

Potter and Bimble

I can feel my physical energy starting to return and the joint inflammation is dissipating.  And I am pretty sure that reading the signs and stopping rather than pushing through has helped the process.  Participating in an online conference with several Mindfulness meditations most likely played a role too. So today I have been indulgingContinue reading “Potter and Bimble”

Body beautiful

I visited my exercise therapist today. Yes it’s a thing and if you have M.E or other forms of unexplained fatigue you get to find out what one of these can do. It’s been a revelation. Something I initially resisted but have embraced. It sounded like it would be something akin to school gym. JumpingContinue reading “Body beautiful”

M.E. mine

I am pretty tired today. Tiredness alarms me. I’d rather it didn’t but this is one of the life lessons where i’m probably getting a C minus. I’ve not written about this part of my life yet. Mainly because I don’t really want to give it such prominence but there it is, slap bang inContinue reading “M.E. mine”