Their Final Performance: ProtestNICE4ME

Image reads: THEIR FINAL PERFORMANCE 1.1.   Who better than those who profess to know minds to twist our actions? Those that have plundered the void to plug with their confidence (tricks). To keep those of us blighted by secrets locked tight in our cells bombarded by their (un)veiled attacks. To call us the aggressors in theirContinue reading “Their Final Performance: ProtestNICE4ME”

P/o/EM

I wrote the poem below twelve days ago now. People with M.E. (Myalgic Encephalomyelitis) will recognise the play on a familiar term we use in my title – PEM, which is short for Post-Exertional Malaise. This is a time when M.E. symptoms intensify – the feeling of having no energy, heavy limbs, exhaustion and depletion,Continue reading “P/o/EM”

M.E and the virus that went away…for a while… (maybe)

(This is the second part of three of my story of M.E.  If you haven’t yet, I’d recommend you read part one here) 2nd Edit: Oops. I managed to forget a very significant event in my life, or maybe block it out, due to my desire to finish this piece and rest. I’ve added it now.Continue reading “M.E and the virus that went away…for a while… (maybe)”

If only

I was just starting to stir this morning. Not quite asleep, not quite awake, lying in the world in between. I felt nothing. No pain, no tiredness, for a moment I thought I had recovered and allowed space to entertain the feeling. But I took a breath and time moved on and it all cameContinue reading “If only”

Defective

New poem for ME Awareness Month 2021. I wanted to write something that reflects the frustration of being dismissed, ignored & gaslighted because we cannot be “good productive members” of a consumerist economy. Seems apt to post this on International Workers Day too. For more information on living with M.E or caring for someone withContinue reading “Defective”

Life as of 31st January 2020 (I am with you)

It hurts to move,  to disappoint the ones you love I am with you.  There is pain in your eyes, as you leave your friends behind I am with you.  There is a lump in your throat, as you watch it fade away I am with you.  There is hope in your heart that it willContinue reading “Life as of 31st January 2020 (I am with you)”

Ode to a Bad Day

You can gather from the title today is not a good day. Yesterday wasn’t great either but today, has definitely been what those of us with mild-moderate M.E call a Bad Day. I wanted to write today. I also wanted to do some housework. I wanted to go to the library and maybe stop offContinue reading “Ode to a Bad Day”

The formula for Gratitude

Want to know what gratitude feels like? Take away the every day… Take away getting ready for work Take away opening jars, making tea, standing while it brews Take away hats, scarves, sunglasses, flipflops Take away cosy chats, feisty debates, gossiping girls Take away walking, running, cycling, swimming Take away everything you never knew youContinue reading “The formula for Gratitude”

The eclipse

Burning brightly, joyously. Solidly. Creating life-force and essential fire, until it falls – Shadow Only glimmers struggle to stay Reminders of what lies behind The shadow sits, weighty and cold Dense and obstinate, refusing to leave It stifles and suppresses its enemy – Light For a while it wins. All that once shone removed Pain.Continue reading “The eclipse”

Composure

Yesterday I had that moment all aspiring writers have.  “Why I am doing this?  Am I even any good?  Am I just indulging myself? Should I even bother sharing my work?” I allowed myself some time to reflect on this, to ask the question without a furious search for the right answer.  Instead I rememberedContinue reading “Composure”